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Playbook for Health Data Sharing Ecosystems

Welcome to the Playbook for Health Data Sharing Ecosystems

Data Sharing Approaches

Introduction to Data Sharing
Copy and Download
Researcher to Data
Model to Data

FAIR Data Exchange

Introduction to FAIR Data
Findable
Accessible
- Retrievable Metadata
- Persistent Metadata
Interoperable
Reusable
- Reusable Metadata
FAIR Data Points
- Building Blocks
Metadata Layer
- Matching Layers
- Metadata Standards
Schematics

Privacy-Enhancing Technologies (PET)

Introduction to PETs
Data Minimalization
Algorithmic PETs
Model-to-Data PETs
Augmentation PETs
Concluding remarks and variations of the techniques and solutions

Legislation

Legislation relevant for sharing of health data
Basic Principles of the GDPR
WGBO - Medical Treatment Agreement Act
WMO - Medical Scientific Research with Persons
CTR - Clinical Trial Directive and Regulation
Wabvpz - Supplementary Provisions for the Processing of Personal Data in Healthcare Act
96/9/EC - The Database Directive
2004/23/EC - Human Tissues and Cell Directive
MDR - Medical Device Regulation

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